So...I'm tired of having words like epileptic encephalopathy (boo, hiss, yuck) swirl around and around in my brain, zapping my joy and making me an anxious mess. I'm tired of wondering what impact all this will have on my sweet girl and her future/development. Frankly, I'm just tired of being awake at 3am with a thousand unanswered questions and big old panic attack.
Life goes on...whether I'm sleeping at 3am or not. Let's move on too, shall we?
Since Bella was in the hospital on Valentine's day, I was a little bummed she wouldn't get to wear her Valentine's outfit. Hey, there's so much I can't do with Bella, but I CAN buy her cute clothes. Don't judge me.
We did manage to wear it to physical and feeding therapy on Wednesday though. A little over the top for a therapy session, but oh well. The feeding therapist didn't mention the word g-tube one time during Bella's appt, despite her only gaining 3 oz. I'm totally giving credit to the outfit.
Before all the drama with Miss Bella, I had signed up to help with the 2nd grade Valentine's party and bring sweets. (Yes, I do have 2 other children-they just have been a little left out of the blog lately). I really wanted a cute yummy snack to bring. Now, you should know, I am NOT creative. I hate scrapbooking, doing crafts, etc. In fact, just typing the word scrapbooking makes me feel all hot and a little,well, twitchy. Is that a word?!
Thanks to Heather though, I was able to come up with a very easy, creative snack. Cookie lollipops! Thanks, Heather!! They were so simple, and were a hit with the 2nd graders.
Ahh...I can check off "make something instead of cupcakes to class party" off my bucket list now.
Looking back over my pictures of the last few months, I noticed I have very few of Drew and Alex. Whoops.
Here's what I have (someday they will be thrilled to see these): Here's Alex being, well...Alex.
And here's one of Drew sporting a beard and glasses. They were drawn on him with makeup for a challenge in the game "You've got to be kidding." Let's just say, he was not amused.
In fact, I think he may have refused to finish the game. It probably didn't help that his brother thought it was hilarious.
Two of my friends gave me these verses this past week. I love them, and I'm trying to remember their promise:
"Fear not, for I am with you; Be not dismayed, for I am your God; I will strengthen you, I will help you, I will uphold you with my righteous right hand." Isaiah 41:10
"Those who live in the shelter of the most High, will find rest in the shadow of the Almighty." Psalm 91:1.
Thanks, Tammy and JoEllen!
Now, if only I can remember this during my 3am panic attacks...sigh.
I hope you all had a great Valentines day, filled with lots of love, and of course, cookie lollipops. :)
